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Name Comments
9) Carrie Loughran RD,LD 
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Wednesday, November 23, 2011 03:04 PM Write a comment

I read about your son Evan in the Oregonian today. Your story breaks my heart. It made me wonder if anyone has shared with you Johns Hopkin's research that indicates the ketogenic diet is considered the ideal first intervention for West syndrom/infantile spasms? Even over ACTH and surgery?
I have treated over 500 babies/children over the past 18 years using the ketogenic diet for seizure control.
I actually worked at OHSU for 7 years and know the Dr.s there. Dr. Koch and Dr. Roberts know of my work. I left there 6 years ago to educate internationally. Please keep this option in mind as your journey of finding seizure freedom continues.


David Wednesday, November 23, 2011 03:12 PM
Hi Carrie,

Thank you so much for signing Evan's guestbook, and for all of your support! Yes, absolutely, Hopkins and the keto diet have helped so many. Unfortunately, the keto diet just wasn't something that would achieve seizure freedom with Evan, as we did try it for some time. Both Dr. Koch and Dr. Roberts were wonderful, and we are very appreciative of them and their efforts to get Evan to UCLA for further evaluation, as this is where they both felt Evan would have the best chance. Hemispherectomy is what it took; simply removing the left side that was so underdeveloped. He has been seizure free for one year exactly, today! Thanks again!
8) Jason Smith 
Location:
Tualatin, OR
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Wednesday, November 23, 2011 08:22 AM Write a comment

Cheers to Evan and your whole family! All the best for today and all the years to come!
7) Grandma Lyda & Grandpa Brian 
Location:
Eagle,Idaho
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Tuesday, November 22, 2011 08:46 PM Write a comment

We are sure missing our boys! We had a great time visiting. Stella misses her kisses.
6) Debi 
Location:
Detroit, Michigan area
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Sunday, November 20, 2011 11:01 PM Write a comment

My prayers to you all for your incredible love and patience. I hope the very best of continued success for the adorable Evan.
5) Amanda and Family 
Location:
Coquille
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Friday, November 4, 2011 05:37 PM Write a comment

Love the new site! Evan looks like he is doing so well!! We think of you guys often!
Love the halloween costumes, Go Ducks :)
4) Aunt Kee 
Location:
Idaho
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Tuesday, October 25, 2011 05:15 PM Write a comment

The new site looks great!!! We love you! Keeley and Carter
3) MISHA MISTRY 
Location:
india
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Thursday, October 20, 2011 11:34 AM Write a comment

ur doing a great job!
my son is epilaptic too.
2) Eric Rohloff 
Location:
Kalamazoo, Michigan
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Tuesday, October 18, 2011 12:27 PM Write a comment

Nice job on the site. big grin
1) David 
IP logged Mozilla/5.0 (Windows NT 6.1; WOW64; rv:7.0.1) Gecko/20100101 Firefox/7.0.1
Tuesday, October 18, 2011 10:34 AM Write a comment

Hi Evan! You are doing such a wonderful job!! wink We love you!
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